Correct Answer : Option (C) - April 17th
World Hemophilia Day is an annual observance held on April 17th to raise awareness about hemophilia, a rare and inherited bleeding disorder. This year, the theme for World Hemophilia Day 2024 is “Equitable access for all: recognizing all bleeding disorders.” This article will explore the history, significance, and importance of this important health observance.
History of World Hemophilia Day :
The foundation of World Hemophilia Day was laid in 1989 by the World Federation of Hemophilia (WFH). The date of April 17th was chosen to honor the birth of Frank Schnabel, the founder of the organization, who played a pivotal role in advocating for hemophilia awareness and improved treatment options.
Hemophilia: A Royal Disease :
While hemophilia cases have been documented as far back as ancient Egypt, the disease gained more widespread recognition when Queen Victoria of England became a carrier of hemophilia B, or factor IX deficiency, in the 19th century. She passed on this genetic trait to three of her nine children, earning hemophilia the moniker “the royal disease.”
The Etymology of Hemophilia :
The term “hemophilia” is a shortened version of the original term “hemorrhaphilia,” which was coined by Dr. Schonlein, a professor at the University of Zurich, and his student, Friedrich Hopff.
Understanding Hemophilia :
Hemophilia is a rare bleeding disorder in which the blood does not clot properly due to alterations in the genes that regulate the body’s ability to stop bleeding. This genetic condition is more common in men, as the genes responsible for producing the clotting factors VIII and IX are located on the X chromosome.
