Correct Answer : May 8th
Observed annually on May 8th, World Thalassaemia Day aims to raise global awareness about this genetic disorder, support those affected and their caregivers, promote research for a cure, and dispel myths surrounding the disease.
This year’s (2024) theme is : “Empowering Lives, Embracing Progress: Equitable and Accessible Thalassaemia Treatment for All’’.
Understanding Thalassaemia :
Thalassaemia is a genetic disorder that affects the production of haemoglobin, leading to a shortage of red blood cells and anaemia. While carriers of the thalassaemia gene may lead normal lives, those with thalassaemia major require repeated blood transfusions and are susceptible to various infections, organ complications, and potential organ failure.
Origins of World Thalassaemia Day :
In 1994, the Founder of the
Thalassemia International Federation (TIF), Panos Englezos, established World Thalassaemia Day in memory of his son George, who lost his life to the disease. The day was created to unite efforts in fighting thalassaemia, remembering those who succumbed to it, and finding a cure.
Global Efforts and Support :
Over the years, patient support groups, healthcare professionals, and advocacy organizations worldwide have championed the cause, highlighting the challenges faced by individuals living with thalassaemia and their families, including the need for regular blood transfusions, iron chelation therapy, and access to quality healthcare.
